Today was a day of discouragement. I
woke up feeling so down and frustrated. It has been 10 treatments and
I haven't seen any lasting improvement. I started to question and
doubt everything we've been doing. I wondered if this guy knows what
he's doing at all!
It's hard to have hope in something and
then be waiting for the results to come through. We want things to be
instant or at least to have a hint at what the future will bring.
It's hard to hang on and trust that the Lord will bring us through
the other side of something. I know He is with me and I'm going
through this particular treatment for a reason and I just have to
hold tight to that.
It's a crappy, feel sorry for myself
kind of day. I have these every once in a while and I think it's ok
to have them. I'll feel better tomorrow and be back to my positive
self again.
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I'm feeling less whiny today and ready to go into my 11th treatment. We'll see......
ReplyDeleteThank you, Thank you, Thank you ! I wish I would have found your blog sooner. I have been dealing with PCS myself. Its always good to hear the positive progress people make - its so easy to get down because of the isolation or frustration because nothing works. Again Thank you!!!
ReplyDeleteMichael, I'm so sorry you are dealing with PCS. Yes, it can be frustrating, but it has had an impact on my life that I don't regret. Good luck to you! What treatments have you tried? Have you had any luck with anything?
Delete-Kate
Hey guys
ReplyDeleteI having an awesome day. Brain is still, body is relaxed (compared to other days) and I don't feel any stress. Maybe the first sun in 2 weeks helps aswell :) .
I got alot of treatment suggestion. Some make it better, some dosen't, but they don't make it as pre injury. I think my biggest challenge was, and still is, to accept that "it is as it is". Somedays are "bad days", u feel like shit, that nothing will work and u just wanna lay down and vanish. Luckley enough that dosent happends that often anymore (one or twice a week maybe).
I like ton anlyze things, like all things including myself. Pre accident i did it all the time, on the bus, at job,at the pub. I still do it, but i have learn that is just frustating and really depressing to do on "bad days" (with some generalization in the statement). So now I have stopped doing it and make this changing in habits is (speaking about my experience) the best treatment i have discovered. To me, it's all about triel and error, evaluating it on normal days, and then try to do something diffretn next time.
My pain is basicly just memories now (verry light), its just anoying more then anything. Confusion and anxiety is bsicly every morning. Some weeks ago i wathc a formerNFL player talk about his brainproblems and he said "when it is all bad, the only place i can go to is the shower, lock the door and turn of the lights". From last week my mornings usually includes a 30 mins shower in an Indian sitting. Before that i did 15 mins of Yoga (or strethcing with breathcontrol). Both methods work gods for me in the morning.
My own take of my own disease/syndome/or whatever u wanna call it (im not a doctor so it probably not accurate) is (extremly basicly): Barin have been disrupted, filter information difrently, is more inclined to pick up on pain, stress, or whatever. I can't see this (like the squirrel). So when i react to something i experincing as familiar, the brain reacts a little bit diffrently (just as the squrriel needs to go a diffrent way to the mountian). Over time when i encounter "this something" I will be more used to howe my brain reacts to it aswell as the brain will react diffrently (quite common for stress,dunno howe it is for pain). After a long time (many trips to the mountain) the brain have mapped a new way to handle the experience from that encounter and the reactions will be less stressfull (hopefully painfull) etc.
So, with this in mind, I usually don't (atleast tries) to judge myself so hard. My brain had 29 years to create paths, that generate emotions thoughts etc., and now some of those paths have been blocked/changed. It isn't strange that I experience somethings diffrent and will take time for me to adjust to it. And that just how it is. I'm totaly convince that it will be better over time (so far so good) if I got the patience.
So two tips. Try to judge yourself less and try to accept yourself more. "It is what it is"
Check in again in a week or so. Take care
I hope things are going better for you now. The LENS process changes the brainwaves just a tiny bit at a time, so it's easy to get discouraged. I pray for you every day.
ReplyDeleteThanks Kathy!
DeleteI'm trying to stay encouraged. Z-score is a longer, slower process. We've abandoned LENS as it wasn't giving me any lasting improvement. Hopefully I'll see some improvement in my quality of life through this!
-Kate
Hope its good with u guys. Felt like shit the last two days for some reason. Its like starring into a concrete wall, evrything is like nothing, just blank, boring. My guess is that i just need to contunie as normal and wait it out, it has always worked, but when u feel like this, u always doubt it for some reason. It so frustarting.
ReplyDeleteHey Jonas,
DeleteSorry you had a bad day. I guess we all have them here and there. It's tough to stay positive every day and I think that's ok. Hang in there!
-Kate